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Psychological approach in managing muscular dystrophy patients in Malaysia

Muscular dystrophy is a hereditary and progressive degenerative disorder affecting skeletal muscles, and often-other organ systems. The real bur-den of muscular dystrophy in Malaysia is difficult to estimate, since the epidemiological data for each of muscular dystrophies and even for muscu-lar dyst...

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Main Authors: Che Ismail, Elna Herawati, Othman, Nooraini
Format: Article
Published: Iranian Journal of Public Health 2015
Subjects:
T Technology (General)
Online Access:http://eprints.utm.my/id/eprint/55115/
http://ijph.tums.ac.ir/index.php/ijph/article/viewFile/3623/3298
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spelling my.utm.551152016-08-29T02:40:52Z http://eprints.utm.my/id/eprint/55115/ Psychological approach in managing muscular dystrophy patients in Malaysia Che Ismail, Elna Herawati Othman, Nooraini T Technology (General) Muscular dystrophy is a hereditary and progressive degenerative disorder affecting skeletal muscles, and often-other organ systems. The real bur-den of muscular dystrophy in Malaysia is difficult to estimate, since the epidemiological data for each of muscular dystrophies and even for muscu-lar dystrophies in collective are not available. There are not many researches focusing on mus-cular dystrophy in Malaysia. The few available re-searches related to muscular dystrophy in Malaysia are mostly revolving around the medical and ge-netic science aspects of it, not in the psychology and social sides of the disease. There is no official definition for rare diseases in Malaysia. Nonethe-less, the unofficial working definition for rare dis-eases in Malaysia is that the rare diseases are dis-eases, which affect less than one in 4000 people in the population. About 3% of babies will have some serious birth defect worldwide while in Ma-laysia, there are around 600,000 births every year and therefore, there would be about 18,000 babies will be born with birth defects every year. Iranian Journal of Public Health 2015-03-01 Article PeerReviewed Che Ismail, Elna Herawati and Othman, Nooraini (2015) Psychological approach in managing muscular dystrophy patients in Malaysia. Iranian Journal of Public Health, 44 (3). pp. 418-419. ISSN 0304-4556 http://ijph.tums.ac.ir/index.php/ijph/article/viewFile/3623/3298
institution Universiti Teknologi Malaysia
building UTM Library
collection Institutional Repository
continent Asia
country Malaysia
content_provider Universiti Teknologi Malaysia
content_source UTM Institutional Repository
url_provider http://eprints.utm.my/
topic T Technology (General)
spellingShingle T Technology (General)
Che Ismail, Elna Herawati
Othman, Nooraini
Psychological approach in managing muscular dystrophy patients in Malaysia
description Muscular dystrophy is a hereditary and progressive degenerative disorder affecting skeletal muscles, and often-other organ systems. The real bur-den of muscular dystrophy in Malaysia is difficult to estimate, since the epidemiological data for each of muscular dystrophies and even for muscu-lar dystrophies in collective are not available. There are not many researches focusing on mus-cular dystrophy in Malaysia. The few available re-searches related to muscular dystrophy in Malaysia are mostly revolving around the medical and ge-netic science aspects of it, not in the psychology and social sides of the disease. There is no official definition for rare diseases in Malaysia. Nonethe-less, the unofficial working definition for rare dis-eases in Malaysia is that the rare diseases are dis-eases, which affect less than one in 4000 people in the population. About 3% of babies will have some serious birth defect worldwide while in Ma-laysia, there are around 600,000 births every year and therefore, there would be about 18,000 babies will be born with birth defects every year.
format Article
author Che Ismail, Elna Herawati
Othman, Nooraini
author_facet Che Ismail, Elna Herawati
Othman, Nooraini
author_sort Che Ismail, Elna Herawati
title Psychological approach in managing muscular dystrophy patients in Malaysia
title_short Psychological approach in managing muscular dystrophy patients in Malaysia
title_full Psychological approach in managing muscular dystrophy patients in Malaysia
title_fullStr Psychological approach in managing muscular dystrophy patients in Malaysia
title_full_unstemmed Psychological approach in managing muscular dystrophy patients in Malaysia
title_sort psychological approach in managing muscular dystrophy patients in malaysia
publisher Iranian Journal of Public Health
publishDate 2015
url http://eprints.utm.my/id/eprint/55115/
http://ijph.tums.ac.ir/index.php/ijph/article/viewFile/3623/3298
_version_ 1643653699059318784
score 13.211869

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