EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS

This study explored the experience of individuals with SLE, identify their challenges and the individual coping strategies including the support system available. Eight SLE patients diagnosed with SLE for two years or more were interviewed using semi-structured interview via telephone call. The find...

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Main Author: Nur Hanani, Mohd Razman
Format: Final Year Project Report
Language:English
Published: Universiti Malaysia Sarawak (UNIMAS) 2020
Subjects:
Online Access:http://ir.unimas.my/id/eprint/37407/1/NUR%20HANANI.pdf
http://ir.unimas.my/id/eprint/37407/
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spelling my.unimas.ir.374072021-12-20T08:40:40Z http://ir.unimas.my/id/eprint/37407/ EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS Nur Hanani, Mohd Razman BF Psychology This study explored the experience of individuals with SLE, identify their challenges and the individual coping strategies including the support system available. Eight SLE patients diagnosed with SLE for two years or more were interviewed using semi-structured interview via telephone call. The findings revealed the challenges which include negative emotional consequences, changes of work and education life, lack of empathy and difficulty of getting pregnant. The Positive Psychology PERMA Model and Self-determination Theory as their coping strategies are discussed. The analysis also revealed that the participants received emotional support, companionship support and informational support from all people. This study could have further implications on the psychological wellbeing of SLE patients, a rare autoimmune disease with common symptoms. Universiti Malaysia Sarawak (UNIMAS) 2020 Final Year Project Report NonPeerReviewed text en http://ir.unimas.my/id/eprint/37407/1/NUR%20HANANI.pdf Nur Hanani, Mohd Razman (2020) EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS. [Final Year Project Report] (Unpublished)
institution Universiti Malaysia Sarawak
building Centre for Academic Information Services (CAIS)
collection Institutional Repository
continent Asia
country Malaysia
content_provider Universiti Malaysia Sarawak
content_source UNIMAS Institutional Repository
url_provider http://ir.unimas.my/
language English
topic BF Psychology
spellingShingle BF Psychology
Nur Hanani, Mohd Razman
EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
description This study explored the experience of individuals with SLE, identify their challenges and the individual coping strategies including the support system available. Eight SLE patients diagnosed with SLE for two years or more were interviewed using semi-structured interview via telephone call. The findings revealed the challenges which include negative emotional consequences, changes of work and education life, lack of empathy and difficulty of getting pregnant. The Positive Psychology PERMA Model and Self-determination Theory as their coping strategies are discussed. The analysis also revealed that the participants received emotional support, companionship support and informational support from all people. This study could have further implications on the psychological wellbeing of SLE patients, a rare autoimmune disease with common symptoms.
format Final Year Project Report
author Nur Hanani, Mohd Razman
author_facet Nur Hanani, Mohd Razman
author_sort Nur Hanani, Mohd Razman
title EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
title_short EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
title_full EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
title_fullStr EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
title_full_unstemmed EXPLORING EXPERIENCES, CHALLENGES AND COPING STRATEGIES OF SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENTS
title_sort exploring experiences, challenges and coping strategies of systemic lupus erythematosus (sle) patients
publisher Universiti Malaysia Sarawak (UNIMAS)
publishDate 2020
url http://ir.unimas.my/id/eprint/37407/1/NUR%20HANANI.pdf
http://ir.unimas.my/id/eprint/37407/
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