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A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA

In the early 19th century in Sarawak, Hansen’s disease or leprosy became a reportable disease where the unfortunate victims were forcibly segregated to a leprosarium, leaving behind family, relatives and future. The image of claw hands or toes and rot noses were associated with the unclean and the s...

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Main Authors:	Parveen, Kaur, Atiqah, Ab Rahim, Anis, Jahoring, Joanna, Edut, Arif, Jawaid
Format:	Article
Language:	English
Published:	Universiti Malaysia Sarawak (UNIMAS) 2017
Subjects:	HN Social history and conditions. Social problems. Social reform HQ The family. Marriage. Woman HS Societies secret benevolent etc HT Communities. Classes. Races
Online Access:	http://ir.unimas.my/id/eprint/19253/7/A%20community.pdf http://ir.unimas.my/id/eprint/19253/ http://www.borneo.unimas.my/borneo-kalimantan-journal
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id	my.unimas.ir.19253
record_format	eprints
spelling	my.unimas.ir.192532023-05-26T07:28:24Z http://ir.unimas.my/id/eprint/19253/ A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA Parveen, Kaur Atiqah, Ab Rahim Anis, Jahoring Joanna, Edut Arif, Jawaid HN Social history and conditions. Social problems. Social reform HQ The family. Marriage. Woman HS Societies secret benevolent etc HT Communities. Classes. Races In the early 19th century in Sarawak, Hansen’s disease or leprosy became a reportable disease where the unfortunate victims were forcibly segregated to a leprosarium, leaving behind family, relatives and future. The image of claw hands or toes and rot noses were associated with the unclean and the sinful. This chronic transmissible affliction made a great panic to the state government to ostracize sufferers in an isolated settlement back in the 1920s. Fortunately, the infection can be cured but negative attitudes towards the former leprosy patients persist until now. This paper is based on ethnographic work that explores the stigma experienced and challenges faced by former leprosy patients and their generation. The research findings are based on three months of fieldwork with seven former sufferers and three children of former sufferers who live in Kampung Sinar Baru, Kota Padawan, Sarawak, a resettlement village for the former leprosy patients. The findings reveal their dreadful past experiences on compulsory segregation in Rajah Charles Brooke Memorial Hospital (RCBMH) where they were forced to be separated from family and hometown which still haunt them till today. In addition, former patients suffer mental health consequences and humiliation from the effects of treatment and also from visible deformities. Nevertheless, they believe that the stigmatization is less severe now than in the past and empathy from society makes them become more independent. Universiti Malaysia Sarawak (UNIMAS) 2017 Article NonPeerReviewed text en http://ir.unimas.my/id/eprint/19253/7/A%20community.pdf Parveen, Kaur and Atiqah, Ab Rahim and Anis, Jahoring and Joanna, Edut and Arif, Jawaid (2017) A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA. Journal of Borneo Kalimantan, 3 (2). pp. 23-35. ISSN 2289-2583 http://www.borneo.unimas.my/borneo-kalimantan-journal
institution	Universiti Malaysia Sarawak
building	Centre for Academic Information Services (CAIS)
collection	Institutional Repository
continent	Asia
country	Malaysia
content_provider	Universiti Malaysia Sarawak
content_source	UNIMAS Institutional Repository
url_provider	http://ir.unimas.my/
language	English
topic	HN Social history and conditions. Social problems. Social reform HQ The family. Marriage. Woman HS Societies secret benevolent etc HT Communities. Classes. Races
spellingShingle	HN Social history and conditions. Social problems. Social reform HQ The family. Marriage. Woman HS Societies secret benevolent etc HT Communities. Classes. Races Parveen, Kaur Atiqah, Ab Rahim Anis, Jahoring Joanna, Edut Arif, Jawaid A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
description	In the early 19th century in Sarawak, Hansen’s disease or leprosy became a reportable disease where the unfortunate victims were forcibly segregated to a leprosarium, leaving behind family, relatives and future. The image of claw hands or toes and rot noses were associated with the unclean and the sinful. This chronic transmissible affliction made a great panic to the state government to ostracize sufferers in an isolated settlement back in the 1920s. Fortunately, the infection can be cured but negative attitudes towards the former leprosy patients persist until now. This paper is based on ethnographic work that explores the stigma experienced and challenges faced by former leprosy patients and their generation. The research findings are based on three months of fieldwork with seven former sufferers and three children of former sufferers who live in Kampung Sinar Baru, Kota Padawan, Sarawak, a resettlement village for the former leprosy patients. The findings reveal their dreadful past experiences on compulsory segregation in Rajah Charles Brooke Memorial Hospital (RCBMH) where they were forced to be separated from family and hometown which still haunt them till today. In addition, former patients suffer mental health consequences and humiliation from the effects of treatment and also from visible deformities. Nevertheless, they believe that the stigmatization is less severe now than in the past and empathy from society makes them become more independent.
format	Article
author	Parveen, Kaur Atiqah, Ab Rahim Anis, Jahoring Joanna, Edut Arif, Jawaid
author_facet	Parveen, Kaur Atiqah, Ab Rahim Anis, Jahoring Joanna, Edut Arif, Jawaid
author_sort	Parveen, Kaur
title	A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
title_short	A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
title_full	A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
title_fullStr	A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
title_full_unstemmed	A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA
title_sort	community of secrets : stigmatization of former hansen's disease patients and their generations in kampung baru, sarawak, malaysia sarawak, malaysia
publisher	Universiti Malaysia Sarawak (UNIMAS)
publishDate	2017
url	http://ir.unimas.my/id/eprint/19253/7/A%20community.pdf http://ir.unimas.my/id/eprint/19253/ http://www.borneo.unimas.my/borneo-kalimantan-journal
_version_	1767209814113386496
score	13.211869

A community of secrets : Stigmatization of former Hansen's Disease patients and their generations in Kampung Baru, Sarawak, Malaysia SARAWAK, MALAYSIA

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