Educational needs of newly diagnosed cancer patients in learning about cancer: A qualitative study in the Malaysian urban setting / Murallitharan Munisamy
Patients with chronic diseases such as cancer are able to have better outcomes if they understand about all aspects of the disease, develop the correct attitude to manage themselves and their disease better; and engage in preventive practices that can help them prevent worsening of disease or...
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| Format: | Thesis |
| Published: |
2020
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| Online Access: | http://studentsrepo.um.edu.my/12658/4/murallitharan.pdf http://studentsrepo.um.edu.my/12658/ |
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| Summary: | Patients with chronic diseases such as cancer are able to have better outcomes if they
understand about all aspects of the disease, develop the correct attitude to manage
themselves and their disease better; and engage in preventive practices that can help
them prevent worsening of disease or recurrence. Patient education is an intervention
that has proven to be effective in different settings for this. However in the Malaysian
cancer setting, the educational needs of patients are poorly understood. The aim of this
study was to explore and understand the educational needs of newly diagnosed cancer
patients in learning about cancer in the Malaysian urban setting. Qualitative, in-depth
interviews were carried out via Zoom with 23 cancer patients who were newly
diagnosed over the past 6 months and had sought services at the National Cancer
Society of Malaysia. The patients reported having specific educational needs at the
point of diagnosis, during their treatment journey; and in terms of emotional and
psychosocial management. Delivery of patient education included challenges from both
the patients themselves as well as system-level delivery. Patients reported that their
cancer-related educational needs were partially fulfilled but had suggestions on how to
better provide effective patient education. Newly diagnosed cancer patients have
educational needs that are being partially fulfilled. Further research and improvement
can aid in designing and delivering better educational solutions which can benefit
patients. |
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