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An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context

Background: Involving patients in decision-making is an important part of patient-centred care. Research has found a discrepancy between patients' desire to be involved and their actual involvement in healthcare decision-making. In Asia, there is a dearth of research in decision-making. Using M...

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Main Authors: Ng, C.J., Lee, P.Y., Lee, Y.K., Chew, B.H., Julia, P.E., Irmi, Z.I., Hanafi, N.S., Tong, S.F.
Format: Article
Published: BioMed Central 2013
Subjects:
R Medicine
Online Access:http://eprints.um.edu.my/9917/
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spelling my.um.eprints.99172017-07-14T07:06:57Z http://eprints.um.edu.my/9917/ An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context Ng, C.J. Lee, P.Y. Lee, Y.K. Chew, B.H. Julia, P.E. Irmi, Z.I. Hanafi, N.S. Tong, S.F. R Medicine Background: Involving patients in decision-making is an important part of patient-centred care. Research has found a discrepancy between patients' desire to be involved and their actual involvement in healthcare decision-making. In Asia, there is a dearth of research in decision-making. Using Malaysia as an exemplar, this study aims to review the current research evidence, practices, policies, and laws with respect to patient engagement in shared decision-making (SDM) in Asia. Methods: In this study, we conducted a comprehensive literature review to collect information on healthcare decision-making in Malaysia. We also consulted medical education researchers, key opinion leaders, governmental organisations, and patient support groups to assess the extent to which patient involvement was incorporated into the medical curriculum, healthcare policies, and legislation. Results: There are very few studies on patient involvement in decision-making in Malaysia. Existing studies showed that doctors were aware of informed consent, but few practised SDM. There was limited teaching of SDM in undergraduate and postgraduate curricula and a lack of accurate and accessible health information for patients. In addition, peer support groups and 'expert patient' programmes were also lacking. Professional medical bodies endorsed patient involvement in decision-making, but there was no definitive implementation plan. Conclusion: In summary, there appears to be little training or research on SDM in Malaysia. More research needs to be done in this area, including baseline information on the preferred and actual decision-making roles. The authors have provided a set of recommendations on how SDM can be effectively implemented in Malaysia. BioMed Central 2013 Article PeerReviewed Ng, C.J. and Lee, P.Y. and Lee, Y.K. and Chew, B.H. and Julia, P.E. and Irmi, Z.I. and Hanafi, N.S. and Tong, S.F. (2013) An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context. BMC Health Services Research, 13. ISSN 1472-6963
institution Universiti Malaya
building UM Library
collection Institutional Repository
continent Asia
country Malaysia
content_provider Universiti Malaya
content_source UM Research Repository
url_provider http://eprints.um.edu.my/
topic R Medicine
spellingShingle R Medicine
Ng, C.J.
Lee, P.Y.
Lee, Y.K.
Chew, B.H.
Julia, P.E.
Irmi, Z.I.
Hanafi, N.S.
Tong, S.F.
An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
description Background: Involving patients in decision-making is an important part of patient-centred care. Research has found a discrepancy between patients' desire to be involved and their actual involvement in healthcare decision-making. In Asia, there is a dearth of research in decision-making. Using Malaysia as an exemplar, this study aims to review the current research evidence, practices, policies, and laws with respect to patient engagement in shared decision-making (SDM) in Asia. Methods: In this study, we conducted a comprehensive literature review to collect information on healthcare decision-making in Malaysia. We also consulted medical education researchers, key opinion leaders, governmental organisations, and patient support groups to assess the extent to which patient involvement was incorporated into the medical curriculum, healthcare policies, and legislation. Results: There are very few studies on patient involvement in decision-making in Malaysia. Existing studies showed that doctors were aware of informed consent, but few practised SDM. There was limited teaching of SDM in undergraduate and postgraduate curricula and a lack of accurate and accessible health information for patients. In addition, peer support groups and 'expert patient' programmes were also lacking. Professional medical bodies endorsed patient involvement in decision-making, but there was no definitive implementation plan. Conclusion: In summary, there appears to be little training or research on SDM in Malaysia. More research needs to be done in this area, including baseline information on the preferred and actual decision-making roles. The authors have provided a set of recommendations on how SDM can be effectively implemented in Malaysia.
format Article
author Ng, C.J.
Lee, P.Y.
Lee, Y.K.
Chew, B.H.
Julia, P.E.
Irmi, Z.I.
Hanafi, N.S.
Tong, S.F.
author_facet Ng, C.J.
Lee, P.Y.
Lee, Y.K.
Chew, B.H.
Julia, P.E.
Irmi, Z.I.
Hanafi, N.S.
Tong, S.F.
author_sort Ng, C.J.
title An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
title_short An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
title_full An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
title_fullStr An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
title_full_unstemmed An overview of patient involvement in healthcare decision-making: a situational analysis of the Malaysian context
title_sort overview of patient involvement in healthcare decision-making: a situational analysis of the malaysian context
publisher BioMed Central
publishDate 2013
url http://eprints.um.edu.my/9917/
_version_ 1643688693893955584
score 13.211869

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