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Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module

Background The PedsQL 3.0 End Stage Renal Disease (ESRD) Module is a well-accepted instrument internationally but it is not available in the local language. We aimed to validate the Bahasa Melayu (Malay language) version and determine the health-related quality of life (HRQoL) scores amongst childre...

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Main Authors: Abu Bakar, Kamila, Muhamad, Nor Asiah, Sarpin, Mohamad Alwi, Shaharudin, Syaniza, Sidhu, Sangeet, Li Yap, Suet, Hussain, Tengku Hasnita Tengku, Tan, Hai Liang, Ong, Fen Ni, Gan, Wen Chian, Ilias, Mohammad Ikram, Othman, Juliana, Eng, Caroline Siew Yin
Format: Article
Published: Springer Verlag 2023
Subjects:
RC Internal medicine
RJ Pediatrics
Online Access:http://eprints.um.edu.my/39374/
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spelling my.um.eprints.393742023-12-03T01:33:14Z http://eprints.um.edu.my/39374/ Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module Abu Bakar, Kamila Muhamad, Nor Asiah Sarpin, Mohamad Alwi Shaharudin, Syaniza Sidhu, Sangeet Li Yap, Suet Hussain, Tengku Hasnita Tengku Tan, Hai Liang Ong, Fen Ni Gan, Wen Chian Ilias, Mohammad Ikram Othman, Juliana Eng, Caroline Siew Yin RC Internal medicine RJ Pediatrics Background The PedsQL 3.0 End Stage Renal Disease (ESRD) Module is a well-accepted instrument internationally but it is not available in the local language. We aimed to validate the Bahasa Melayu (Malay language) version and determine the health-related quality of life (HRQoL) scores amongst children with CKD in Malaysia. Methods The source questionnaire in English was translated into Bahasa Melayu. Linguistic validation guidelines by the MAPI Research Institute were followed. The already validated Bahasa Melayu PedsQL 4.0 Generic Core Scales was used for comparison. Sociodemographic data were collected during the interview. Statistical analyses were performed using SPSS version 25.0. Results Sixty-nine children aged 8 to 18 with CKD stages 4 and 5, with or without dialysis, and their caregivers were recruited. Mean age was 12.62 +/- 2.77 (SD). Evaluation of the PedsQL 3.0 ESRD Module Bahasa Melayu version demonstrated good internal consistency (Cronbach alpha 0.82). There was good agreement between child self-report and parent proxy report in all domains; average intraclass correlation coefficients (ICC) were 0.78, 95% CI (0.71, 0.84). Scores obtained from Generic 4.0 scales correlated with the disease-specific ESRD 3.0 scale, Spearman's rho = 0.32, p= 0.007. The Kruskal-Wallis H test indicated that there were no significant differences between stages of CKD and their respective mean HRQoL score, chi(2)(2) = 2.88, p= 0.236. Conclusions The PedsQL 3.0 ESRD Module Bahasa Melayu version is a reliable and feasible tool for cross-cultural adaptation. A longer prospective study may help better illustrate the quality of life in this group of children. Springer Verlag 2023-06 Article PeerReviewed Abu Bakar, Kamila and Muhamad, Nor Asiah and Sarpin, Mohamad Alwi and Shaharudin, Syaniza and Sidhu, Sangeet and Li Yap, Suet and Hussain, Tengku Hasnita Tengku and Tan, Hai Liang and Ong, Fen Ni and Gan, Wen Chian and Ilias, Mohammad Ikram and Othman, Juliana and Eng, Caroline Siew Yin (2023) Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module. Pediatric Nephrology, 38 (6). pp. 1897-1905. ISSN 0931-041X, DOI https://doi.org/10.1007/s00467-022-05774-0 <https://doi.org/10.1007/s00467-022-05774-0>. 10.1007/s00467-022-05774-0
institution Universiti Malaya
building UM Library
collection Institutional Repository
continent Asia
country Malaysia
content_provider Universiti Malaya
content_source UM Research Repository
url_provider http://eprints.um.edu.my/
topic RC Internal medicine
RJ Pediatrics
spellingShingle RC Internal medicine
RJ Pediatrics
Abu Bakar, Kamila
Muhamad, Nor Asiah
Sarpin, Mohamad Alwi
Shaharudin, Syaniza
Sidhu, Sangeet
Li Yap, Suet
Hussain, Tengku Hasnita Tengku
Tan, Hai Liang
Ong, Fen Ni
Gan, Wen Chian
Ilias, Mohammad Ikram
Othman, Juliana
Eng, Caroline Siew Yin
Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
description Background The PedsQL 3.0 End Stage Renal Disease (ESRD) Module is a well-accepted instrument internationally but it is not available in the local language. We aimed to validate the Bahasa Melayu (Malay language) version and determine the health-related quality of life (HRQoL) scores amongst children with CKD in Malaysia. Methods The source questionnaire in English was translated into Bahasa Melayu. Linguistic validation guidelines by the MAPI Research Institute were followed. The already validated Bahasa Melayu PedsQL 4.0 Generic Core Scales was used for comparison. Sociodemographic data were collected during the interview. Statistical analyses were performed using SPSS version 25.0. Results Sixty-nine children aged 8 to 18 with CKD stages 4 and 5, with or without dialysis, and their caregivers were recruited. Mean age was 12.62 +/- 2.77 (SD). Evaluation of the PedsQL 3.0 ESRD Module Bahasa Melayu version demonstrated good internal consistency (Cronbach alpha 0.82). There was good agreement between child self-report and parent proxy report in all domains; average intraclass correlation coefficients (ICC) were 0.78, 95% CI (0.71, 0.84). Scores obtained from Generic 4.0 scales correlated with the disease-specific ESRD 3.0 scale, Spearman's rho = 0.32, p= 0.007. The Kruskal-Wallis H test indicated that there were no significant differences between stages of CKD and their respective mean HRQoL score, chi(2)(2) = 2.88, p= 0.236. Conclusions The PedsQL 3.0 ESRD Module Bahasa Melayu version is a reliable and feasible tool for cross-cultural adaptation. A longer prospective study may help better illustrate the quality of life in this group of children.
format Article
author Abu Bakar, Kamila
Muhamad, Nor Asiah
Sarpin, Mohamad Alwi
Shaharudin, Syaniza
Sidhu, Sangeet
Li Yap, Suet
Hussain, Tengku Hasnita Tengku
Tan, Hai Liang
Ong, Fen Ni
Gan, Wen Chian
Ilias, Mohammad Ikram
Othman, Juliana
Eng, Caroline Siew Yin
author_facet Abu Bakar, Kamila
Muhamad, Nor Asiah
Sarpin, Mohamad Alwi
Shaharudin, Syaniza
Sidhu, Sangeet
Li Yap, Suet
Hussain, Tengku Hasnita Tengku
Tan, Hai Liang
Ong, Fen Ni
Gan, Wen Chian
Ilias, Mohammad Ikram
Othman, Juliana
Eng, Caroline Siew Yin
author_sort Abu Bakar, Kamila
title Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
title_short Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
title_full Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
title_fullStr Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
title_full_unstemmed Health-related quality of life amongst children with chronic kidney disease in Malaysia: Performance of the Bahasa Melayu version of the PedsQL 3.0 ESRD Module
title_sort health-related quality of life amongst children with chronic kidney disease in malaysia: performance of the bahasa melayu version of the pedsql 3.0 esrd module
publisher Springer Verlag
publishDate 2023
url http://eprints.um.edu.my/39374/
_version_ 1784511865552896000
score 13.211869

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