Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]

Families of children with special needs (CWSN) experience many difficulties and are socioeconomically disadvantaged when compared to families of typical children. The burden of care, social, financial and other stressful situations are considered to be crucial in determining the quality of life (QoL...

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Main Authors: Isa, Siti Nor Ismalina, Ishak, Ismarulyusda, Ab Rahman, Azriani, Mohd Saat, Nur Zakiah, Che Din, Normah, Lubis, Syarif Husin, Mohd Ismail, Muhammad Faiz, Mohd Suradi, Nur Riza
Format: Article
Language:English
Published: Faculty of Health Sciences, Universiti Teknologi MARA 2019
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Online Access:https://ir.uitm.edu.my/id/eprint/54700/1/54700.pdf
https://ir.uitm.edu.my/id/eprint/54700/
http://healthscopefsk.com/
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spelling my.uitm.ir.547002021-12-15T04:33:17Z https://ir.uitm.edu.my/id/eprint/54700/ Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.] Isa, Siti Nor Ismalina Ishak, Ismarulyusda Ab Rahman, Azriani Mohd Saat, Nur Zakiah Che Din, Normah Lubis, Syarif Husin Mohd Ismail, Muhammad Faiz Mohd Suradi, Nur Riza Mental health. Mental illness prevention Child Health. Child health services Physical medicine. Physical therapy. Including massage, exercise, occupational therapy, hydrotherapy, phototherapy, radiotherapy, thermotherapy, electrotherapy Families of children with special needs (CWSN) experience many difficulties and are socioeconomically disadvantaged when compared to families of typical children. The burden of care, social, financial and other stressful situations are considered to be crucial in determining the quality of life (QoL) of the families of CWSN. The purpose of this study was to explore the psychosocial constraints faced by caregivers of CWSN in Kelantan, Malaysia which affected their QoL. A qualitative study was conducted utilizing the phenomenology approach. A total of 22 participants were recruited for face-to-face, in-depth interviews. The sample was comprised of caregivers (n = 14), community-based rehabilitation trainers (n = 4), special education teachers (n = 3), and welfare officer (n = 1). Each interview was recorded on audio-tape. The recordings were transcribed and thematic content analysis was used to create codes and identify emerging themes. It was found that psychosocial constraints experienced by the caregivers were associated with common themes such as psychological factors, accessibility to services, socio cultural issues, social supports, and system and policy. Thus, intervention strategies to improve the QoL of caregivers of CWSN should target the family unit and consider the psychosocial factors of the caregivers. Faculty of Health Sciences, Universiti Teknologi MARA 2019-09 Article PeerReviewed text en https://ir.uitm.edu.my/id/eprint/54700/1/54700.pdf ID54700 Isa, Siti Nor Ismalina and Ishak, Ismarulyusda and Ab Rahman, Azriani and Mohd Saat, Nur Zakiah and Che Din, Normah and Lubis, Syarif Husin and Mohd Ismail, Muhammad Faiz and Mohd Suradi, Nur Riza (2019) Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]. Health Scope, 2. pp. 430-435. ISSN 2735-0649 http://healthscopefsk.com/
institution Universiti Teknologi Mara
building Tun Abdul Razak Library
collection Institutional Repository
continent Asia
country Malaysia
content_provider Universiti Teknologi Mara
content_source UiTM Institutional Repository
url_provider http://ir.uitm.edu.my/
language English
topic Mental health. Mental illness prevention
Child Health. Child health services
Physical medicine. Physical therapy. Including massage, exercise, occupational therapy, hydrotherapy, phototherapy, radiotherapy, thermotherapy, electrotherapy
spellingShingle Mental health. Mental illness prevention
Child Health. Child health services
Physical medicine. Physical therapy. Including massage, exercise, occupational therapy, hydrotherapy, phototherapy, radiotherapy, thermotherapy, electrotherapy
Isa, Siti Nor Ismalina
Ishak, Ismarulyusda
Ab Rahman, Azriani
Mohd Saat, Nur Zakiah
Che Din, Normah
Lubis, Syarif Husin
Mohd Ismail, Muhammad Faiz
Mohd Suradi, Nur Riza
Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
description Families of children with special needs (CWSN) experience many difficulties and are socioeconomically disadvantaged when compared to families of typical children. The burden of care, social, financial and other stressful situations are considered to be crucial in determining the quality of life (QoL) of the families of CWSN. The purpose of this study was to explore the psychosocial constraints faced by caregivers of CWSN in Kelantan, Malaysia which affected their QoL. A qualitative study was conducted utilizing the phenomenology approach. A total of 22 participants were recruited for face-to-face, in-depth interviews. The sample was comprised of caregivers (n = 14), community-based rehabilitation trainers (n = 4), special education teachers (n = 3), and welfare officer (n = 1). Each interview was recorded on audio-tape. The recordings were transcribed and thematic content analysis was used to create codes and identify emerging themes. It was found that psychosocial constraints experienced by the caregivers were associated with common themes such as psychological factors, accessibility to services, socio cultural issues, social supports, and system and policy. Thus, intervention strategies to improve the QoL of caregivers of CWSN should target the family unit and consider the psychosocial factors of the caregivers.
format Article
author Isa, Siti Nor Ismalina
Ishak, Ismarulyusda
Ab Rahman, Azriani
Mohd Saat, Nur Zakiah
Che Din, Normah
Lubis, Syarif Husin
Mohd Ismail, Muhammad Faiz
Mohd Suradi, Nur Riza
author_facet Isa, Siti Nor Ismalina
Ishak, Ismarulyusda
Ab Rahman, Azriani
Mohd Saat, Nur Zakiah
Che Din, Normah
Lubis, Syarif Husin
Mohd Ismail, Muhammad Faiz
Mohd Suradi, Nur Riza
author_sort Isa, Siti Nor Ismalina
title Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
title_short Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
title_full Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
title_fullStr Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
title_full_unstemmed Psychosocial constraints experienced by caregivers of children with special needs in Kelantan, Malaysia/ Siti Nor Ismalina Isa ... [et al.]
title_sort psychosocial constraints experienced by caregivers of children with special needs in kelantan, malaysia/ siti nor ismalina isa ... [et al.]
publisher Faculty of Health Sciences, Universiti Teknologi MARA
publishDate 2019
url https://ir.uitm.edu.my/id/eprint/54700/1/54700.pdf
https://ir.uitm.edu.my/id/eprint/54700/
http://healthscopefsk.com/
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score 13.211869