Spiritual care for children with cerebral palsy: an experience-based research

Cerebral Palsy is one type of disability. It normally falls under the category of physical disability according to the Malaysian Department of Social Welfare’s categorisation of disability. However, Cerebral Palsy is unique and complicated. Person with Cerebral Palsy can experience multiple disab...

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Bibliographic Details
Main Author: Mohd Marzuki, Zunaidah
Format: Conference or Workshop Item
Language:English
Published: AbdulHamid AbuSulayman Kulliyyah of Islamic Revealed Knowledge and Human Sciences, International Islamic University Malaysia 2022
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Online Access:http://irep.iium.edu.my/96728/1/96728_Spiritual%20care%20for%20children%20with%20cerebral%20palsy.pdf
http://irep.iium.edu.my/96728/
https://conference.iium.edu.my/inspire/index.php/publication/
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Summary:Cerebral Palsy is one type of disability. It normally falls under the category of physical disability according to the Malaysian Department of Social Welfare’s categorisation of disability. However, Cerebral Palsy is unique and complicated. Person with Cerebral Palsy can experience multiple disabilities (MD category) if he/she has other disabilities like deafness (DE category), blindness (BL category), speech impairment (SD category), physical disability (PH category), learning disability (LD category), and mental disability (ME category). Although Zaid’s disability in his “OKU” card (disability card), is categorised under physical disability, he has some problems in learning compared to other typical children of the same age. His physical disability here is related to movement particularly due to gross motor skills; as he has normal physical limbs, it is not physical disability due non-existence or deficiency of any part of the body. However, due to his Spastic Diplegic type of Cerebral Palsy he has problems in controlling movement of legs that affects his legs’ structure particularly the legs’ palms and knees. All these problems and some other issues have effects on his thinking about himself and his existence. Therefore, it is important to take care of his spiritual aspect besides his physical aspect and to make him understand about the worldview; reality of existence, life, being, human being, God, spirit and spirituality, and life in the hereafter. The author, Zaid’s mother attempts to share her experience in dealing with spiritual care for a person with Cerebral Palsy. The study includes but is not limited to understanding of the reality of Cerebral Palsy and its problems in general, Zaid’s problems in particular, the importance of spiritual care for persons with Cerebral Palsy, and application of spiritual care in the case of Zaid. The study will not only describe the experience between the mother and the child, but also will analyse several literatures on spiritual care, particularly for persons with disability, incorporating Qurʾanic and Sunnah teachings. In a nutshell, this paper is perhaps an eye-opener of practical application in understanding the significance of spiritual care for persons with Cerebral Palsy