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Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia

Background: Despite a growing recognition internationally that children have a right to participate in matters that affect their lives, they are not always involved in decision-making processes concerning their health care. There is a deficit information on how parents influence children’s participa...

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Main Author: Lee, Siew Pien
Format: Conference or Workshop Item
Language:English
English
English
English
English
Published: 2023
Subjects:
RT82 Nursing As A Profession
Online Access:http://irep.iium.edu.my/104516/3/104516_Understanding%20parental%20role%20in%20children%E2%80%99s%20participation%20In%20decision-.pdf
http://irep.iium.edu.my/104516/4/Slide_Presentation_LEE%20SIEW%20PIEN.pptx
http://irep.iium.edu.my/104516/5/LIST%20OF%20PARTICIPANTS%20WITH%20ID%20NUMBER%2009022023_ORAL%20PRESENTERS%20.xlsx%20-%20WCS.pdf
http://irep.iium.edu.my/104516/6/Letter%20of%20abstract%20acceptance%20in%20UiTM%20INC%20February%2002%20%26%2003%2C%202023.pdf
http://irep.iium.edu.my/104516/7/CERTificate_Participation_UiTM%20INC%202023-352.pdf
http://irep.iium.edu.my/104516/
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spelling my.iium.irep.1045162023-04-20T05:49:09Z http://irep.iium.edu.my/104516/ Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia Lee, Siew Pien RT82 Nursing As A Profession Background: Despite a growing recognition internationally that children have a right to participate in matters that affect their lives, they are not always involved in decision-making processes concerning their health care. There is a deficit information on how parents influence children’s participation in decision-making in health care. The aim was to explore the role parents assume in the interaction process surrounding children’s participation in communication exchanges and decision-making in a paediatric oncology unit in Malaysia. Materials and Methods: This study adopted a focused ethnography design within a constructivist research paradigm. Participant observations and semi structured interviews were conducted with 22 parents, 22 children, and 19 nurses at a paediatric oncology unit in Malaysia. All observation fieldnotes and interview recordings were transcribed verbatim. Focused ethnographic data analysis technique was performed to analyze the data. Results: Three themes emerged from the situations where parents played their roles in the communication and decision-making process involving their child: (i) facilitators of communication, (ii) communication brokers, and (iii) communication buffers. Conclusion: Parents controlled the process of decision-making concerning their children’s health care, while the children prefer and welcoming parents as their consultant in decision-making process with regards to their health care. 2023-02-03 Conference or Workshop Item PeerReviewed application/pdf en http://irep.iium.edu.my/104516/3/104516_Understanding%20parental%20role%20in%20children%E2%80%99s%20participation%20In%20decision-.pdf application/pdf en http://irep.iium.edu.my/104516/4/Slide_Presentation_LEE%20SIEW%20PIEN.pptx application/pdf en http://irep.iium.edu.my/104516/5/LIST%20OF%20PARTICIPANTS%20WITH%20ID%20NUMBER%2009022023_ORAL%20PRESENTERS%20.xlsx%20-%20WCS.pdf application/pdf en http://irep.iium.edu.my/104516/6/Letter%20of%20abstract%20acceptance%20in%20UiTM%20INC%20February%2002%20%26%2003%2C%202023.pdf application/pdf en http://irep.iium.edu.my/104516/7/CERTificate_Participation_UiTM%20INC%202023-352.pdf Lee, Siew Pien (2023) Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia. In: UiTM International Nursing Conference 2023, Online Platform (Cisco Webex). (Unpublished)
institution Universiti Islam Antarabangsa Malaysia
building IIUM Library
collection Institutional Repository
continent Asia
country Malaysia
content_provider International Islamic University Malaysia
content_source IIUM Repository (IREP)
url_provider http://irep.iium.edu.my/
language English
English
English
English
English
topic RT82 Nursing As A Profession
spellingShingle RT82 Nursing As A Profession
Lee, Siew Pien
Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
description Background: Despite a growing recognition internationally that children have a right to participate in matters that affect their lives, they are not always involved in decision-making processes concerning their health care. There is a deficit information on how parents influence children’s participation in decision-making in health care. The aim was to explore the role parents assume in the interaction process surrounding children’s participation in communication exchanges and decision-making in a paediatric oncology unit in Malaysia. Materials and Methods: This study adopted a focused ethnography design within a constructivist research paradigm. Participant observations and semi structured interviews were conducted with 22 parents, 22 children, and 19 nurses at a paediatric oncology unit in Malaysia. All observation fieldnotes and interview recordings were transcribed verbatim. Focused ethnographic data analysis technique was performed to analyze the data. Results: Three themes emerged from the situations where parents played their roles in the communication and decision-making process involving their child: (i) facilitators of communication, (ii) communication brokers, and (iii) communication buffers. Conclusion: Parents controlled the process of decision-making concerning their children’s health care, while the children prefer and welcoming parents as their consultant in decision-making process with regards to their health care.
format Conference or Workshop Item
author Lee, Siew Pien
author_facet Lee, Siew Pien
author_sort Lee, Siew Pien
title Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
title_short Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
title_full Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
title_fullStr Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
title_full_unstemmed Understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in Malaysia
title_sort understanding parental role in children’s participation in decision-making during hospitalization: an ethnographic study in malaysia
publishDate 2023
url http://irep.iium.edu.my/104516/3/104516_Understanding%20parental%20role%20in%20children%E2%80%99s%20participation%20In%20decision-.pdf
http://irep.iium.edu.my/104516/4/Slide_Presentation_LEE%20SIEW%20PIEN.pptx
http://irep.iium.edu.my/104516/5/LIST%20OF%20PARTICIPANTS%20WITH%20ID%20NUMBER%2009022023_ORAL%20PRESENTERS%20.xlsx%20-%20WCS.pdf
http://irep.iium.edu.my/104516/6/Letter%20of%20abstract%20acceptance%20in%20UiTM%20INC%20February%2002%20%26%2003%2C%202023.pdf
http://irep.iium.edu.my/104516/7/CERTificate_Participation_UiTM%20INC%202023-352.pdf
http://irep.iium.edu.my/104516/
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score 13.211869

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